2009 Fort Lauderdale's Finest Singles Gala Tickets

Last chance to purchase your 2009 Fort Lauderdale's Finest Singles Gala Tickets.


Saturday, June 20, 2009
at seven o'clock in the evening

Hilton Fort Lauderdale Marina
Grande Ballroom
1881 S.E. 17th Street, Fort Lauderdale, FL 33316


Click To Purchase Online



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Yolo’s O Lounge

Come help Todd Weidert and Brandon O'Malley raise money for Cystic Fibrosis !

Monies raised from events like this go a long way toward the Foundation’s work to find a cure for this genetic disease.

Complimentary drink ticket, Hoursd’oeuvers, Raffle Prizes throughout the evening.

Come out and help support.

June 18, 2009
6:00 - 9:00pm

Yolo’s O Lounge
333 East Las Olas Blvd

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Wine Tasting to benefit the Cystic Fibrosis Foundation

Join Brandyn Lorenz for a Wine Tasting to benefit the Cystic Fibrosis Foundation.

With a $20 donation you’ll drink the night away with a selection of 8 excellent wines to choose from.
Thursday, June 18th
6:00 – 8:00pm

Seventh Street Wine Company
701 S. Federal Hwy.

Cocktail Party for Cystic Fibrosis

Come play with 2009 Fort Lauderdale's Finest Honorees

Jean Nuamah and Christina Antimucci at Fort Lauderdale's newest hot spot, Whiskey Blue at The W Hotel.

Raffle and Appetizer's

Wednesday, June 16th
8pm - 10pm

Proceeds will go directly to the Cystic Fibrosis Foundation.

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Beer Pong Tournament at Bokampers Bar and Grill

Join Brandon O'Malley as he hosts a
Beer Pong Tournament at
Bokampers Bar and Grill
for the Cystic Fibrosis Foundation.

Sunday, June 14th.
5-7 p.m.
$20 Donation

Includes all the Beer and a chance to win a $100 American Express Gift Card for the winning team!

Bokampers Bar and Grill - A great place to watch Game 5 of the NBA Finals after the tournament.
1280 S. Pine Island Rd. Plantation, FL 33324

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Exit 66 - Scorpions Kiss - CFF Fundraiser

Friday June 12th @ Exit 66

$15 Donation includes 2 complimentary drinks from 10pm - 12am

Print out flyer - bring it with you - receive free admission all night.

Think you may forget it... then just remember to mention their Cystic Fibrosis, Jonathan Frank, Josh Leidoff or Nicola Fonseca.

Exit 66 - Your Road To Nightlife

Thursday Night is a CFF Fundraiser Night

From 6 - 11pm
Honoree May Mokdad hosts a fundraiser at BOVA.
$20 Donation: Includes 1 Free Cocktail
BOVA - 401 E Las Olas Blvd

From 8 - 11pm
Honoree Meredith Clements host a fundraiser at the new W Hotel.
$25 Donation
Music by Twilight Notes
W Hotel - 401 North Ft. Lauderdale Beach Boulevard
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Luau Pool Party

Cheryl McCann & Britta Schlager
Host the Kick Off the Summer Luau Pool Party

When:
Sunday Funday, June 14th
12:00pm - ???

Location:
Tropic Cay
529 N Fort Lauderdale Beach Blvd

Donation:
$25

For What:
To help benefit the Cystic Fibrosis Foundation as part of the Fort Lauderdale's Finest Event

Beer Pong - Flip Cup - 50/50 Raffle - Limbo - Watermelon Pool Race - Raft Race Beer Relay

Sport your BEST Luau attire and bring a creative raft for the BIGGEST RAFT RACE PARTY this side of the Mississippi.

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Fort Lauderdale's Finest "The Single Greatest Night in Fort Lauderdale"

From Society Scene |A marketing publication of the Sun-Sentinel Company

On June 20, the Cystic Fibrosis Foundation will host its nineteenth annual "Fort Lauderdale's Finest gala, The Single Greatest Night in Fort Lauderdale." The evening will be held at the Hilton Fort Lauderdale Marina beginning at 7 p.m. Thirty-five honorees will be recognized for their success in business, outstanding leadership and their fundraising commitment to the Cystic Fibrosis Foundation.

The following will be honored: Carrie Allgaier, Christina Antimucci, Lauren Arseneau, Ashley Bathgate, Laura Brill, Branstan Clarke, Meredith Clements, Taryn Conner, Marisa DeMartino, Natalie Echavarria, Russell T. Flowers, Jonathan Frank, Vicky Frizone, Bryan Gold, Kristin Govoni, Chris Hill, Camren Khoshnood, Tracy Kirk, Josh Leidolf, Brandyn Lorenz, Andrea Lourido, Michael McAllister, Cheryl McCann, Brandon McCarraher, Christian Meighan, May Mokdad, Jean Nuamah, Brandon O'Malley, Britta Schlager, Jeremy Schwab, Ryan Shea, Romina Sifuentes, Scott Somers, Mandy Spangler and Todd Weidert.

The event brings together outstanding individuals for business networking, and some have taken it to a new social level, by finding romance. In this case, a set of brothers met their lifelong partners and will be tying the knot next yea; Ryan and Brent Cambell were never the same after participating in the gala. Ryan met his fiancée Jessica in 2006 and Brett met his fiancée Kate in 2007. Brent and Kate were both honorees.

More than 300 guests are expected to attend the "Fort Lauderdale's Finest Singles" gala. The evening will feature a silent auction, live entertainment, open bar and a sit-down dinner. Following a presentation of the Ft. Lauderdale's finest honorees, guests will have the opportunity to mix and mingle with Broward County's most elite singles, while dancing the night away to live music.

The chairpersons of this special evening are Kenny Stiles of Stiles Corporation and Alison Forum with HospiceCare of Southeast Florida. Executive planning committee includes: Tyler Arrington, James Crowley, Laura Devlin, Stuart Dobro, William Elmore III, Nicola Fonseca, Pat Frawley, Lee Garipoli, Lori Henricksen, Dev Motwani and Laurie Watkins.

Sponsors include:: Stiles Family Foundation, Sharon Stiles, Right Management, Kerney & Associates, American Airlines, Ketel One, Stephens Distributing Company, Premier Beverage, Munoz Photography, Sun Sentinel Society Scene, Docuvision and Victoria Park Flowers.

Across the nation, 30,000 children and adults are affected by cystic fibrosis (CF). CF is a genetic disease affecting the respiratory and digestive systems. Currently, there is no cure, but through impressive research efforts, the median age of survival has risen to 36.8 years.

The Cystic Fibrosis Foundation (CFF) has consistently been recognized as one of the top voluntary health organizations in the United States and has been acknowledged by such publications as SmartMoney and Forbes for their efficiency and innovative approach to curing a genetic disease. Almost 90 cents of every dollar raised is available for investment in vital CF programs.

Tickets are $150 each.

For more information about the Cystic Fibrosis Foundation, its Young Professionals Group or its upcoming schedule of events, contact Vicki Swain at 954-739-5006 or e-mail vswain@cff.org.
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Chug & Toss - Horseshoe Tournament

1st Annual

Chug & Toss Horseshoe Tournament
June 6th

Hosted by 2009 CFF Fort Lauderdale's Finest Singles Honoree, Brandyn Lorenz.

$20 Donation entitles you to eat, drink, and have as much fun as you can handle.

Snyder Park - Pavilion FIVE

3299 SW 4th Ave
Ft. Lauderdale, FL 33315

**Beach Volleyball court on site for those inclined to play drunken volleyball.

Please RSVP or email Brandynlorenz@gmail.com

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Fort Lauderdale's Finest Singles @ BOVA

2009 Cystic Fibrosis Foundation Fort Lauderdale's Finest Singles Honoree May Mokdad
hosts a fundraiser at BOVA

June 11th from 6pm - 8pm

$20 donation

Includes 1 Free Cocktail

401 E Las Olas Blvd
Fort Lauderdale, FL 33301

Grillin' & Chillin'

Join Vicky Frizone & Christina Antimucci at America's Backyard.

June 6th, 9-11pm

$10 donation to the Cystic Fibrosis Foundation includes:
No Line
No Cover
Open Bar
And a chance to win Florida Marlins Tickets !

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Cocktails For The Kids

Jean, Jeremy and Ryan
have been honored by the
Cystic Fibrosis Foundation
by being selected as
2009 Fort Lauderdale's Finest Singles
and are raising money to help find a cure!

Come join us at Galuppi's
from 5-8pm and let us overserve you!

A $20 donation to CFF gets you
appetizers and any 1 drink you would like.

80's music will be playing and we'll be dressed to impress, aviators and leg warmers!

Tell everyone you know to come have a drink with us and support a great cause at the same time!

Click To See Full RSVP List

Want to make an additional tax deductible donation?
Click on either Jean's or Jeremy's webpage (or copy and paste to your browser) and donate with your credit card!

http://www.cff.org/LWC/JeremySchwab
http://www.cff.org/LWC/JeanNuamah

Thank you and we hope to see you soon!

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“Art & Soul" Lounge Party

“Art & Soul” Lounge Party
at the new W Hotel
with music by Twilight Notes

Hosted by
Meredith Clements

Sponsors:
Anthony's Runway 84
The W Hotel

Society Scene of Sun Sentinel

Silent Auction:
Mendy Photography
Anthony's Coal-Fired Pizza
Florida Marlins tickets
Open Water Diving Certification
and more.

Admission fee: $25

Thursday, June 11, 2009
8:00pm - 11:00pm
W Hotel - 401 North Fort Lauderdale Beach Boulevard

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May Mokdad CFF Benefit @ Samba Room

Join May Mokdad
Friday, June 5
at Samba Room

8:00pm - 10:00pm

$20 fee includes
drinks and appetizers

For more information e-mail maymokdad@yahoo.com

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2009 CFF Fort Lauderdale's Finest Singles Committee

Co-Chairman
Alison Forum & Ken Stiles

Executive Planning Committee
Dev Motwani
James Crowley
Laura Devlin
Laurie Watkins
Lee Garipoli
Lori Henricksen
Michael Erman
Nicola Fonseca
Pat Frawley
Stuart Dobro
Tyler Arrington
William Elmore III

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BLUE LOURIDO - martinis for a cause

Join Andrea Lourido as she hosts, BLUE LOURIDO - martinis for a cause.

May 30th, 2009 from 6 - 8pm

$20 donation includes 
martini, hors d'oeuvres & raffle ticket

Win:
Day Spa package, Morton’s gift certificate
premium Sunglasses, select Salon products and more.

Additional raffle tickets available.

Can't make it and would like to make a donation...
please click here. http://www.cff.org/lwc/andrealourido

All proceeds to benefit the Cystic Fibrosis Foundation.

Thanks for all your support!

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CFF Beer Pong Tournament

Join 2009 CFF Fort Lauderdale's Finest Single Honoree
Scott Somers as he hosts his Beer Pong Tournament to reach his fundraising goal.

May 30th, 2009
11am - 3pm

Spread the word about this event and get your team together.

Spots are filling fast !

$50 per team to sign up!
(2 people)

Ladies, you are encouraged to participate!!!

Spectators, cheerleaders, coaches and peers are asked to please make a $10 donation at the door.

All proceeds to benefit the Cystic Fibrosis Foundation.

To sign-up email or call Scott Somers
sjsomers@bellsouth.net 954-614-5853

Deadline WED. MAY 27th

Grumpy Gator's
1901 Cordova Rd - Ft. Lauderdale, FL - 33316

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La Playa/Shooter's Spring Fling, Friday May 12, 2009

This Friday Night @ La Playa/Shooter's

Join Tracy Kirk and the 2009 CFF Fort Lauderdale’s Finest Honorees for Great Drink Specials, Live Music, a Bachelor & Bachelorette Auction plus Great Prizes from South Florida’s most popular local restaurants and vendors.

Spread the word and stop by Friday night to show your support for Tracy as she gets closer to reaching her fundraising goal !

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Fort Lauderdale’s Finest Singles To Present Top Three 2009 Fundraisers With…

Congratulations

Mandy Spangler, Laura Brill, Romina Sifuentes, Ryan Shea, Brandyn Lorenz, Marissa DeMartino and Kristin Govoni for already reaching your goals.

But don’t stop there.

Please continue to help even if you have surpassed your $2,000 goal.

Fort Lauderdale’s Finest Singles will present this year’s top three fundraisers with a surprise worthy of a gala June 20th.

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CFF Fort Lauderdale's Finest Singles Gala, June 20th 2009

Fort Lauderdale's Finest Singles
Benefiting
The Cystic Fibrosis Foundation


Honoring Ft. Lauderdale's Finest Singles
for their outstanding contributions to the
community and their fundraising commitment
to the Cystic Fibrosis Foundation

Saturday, June 20, 2009
at seven o'clock in the evening

Hilton Fort Lauderdale Marina
Grande Ballroom
1881 S.E. 17th Street, Fort Lauderdale, FL 33316

Black-Tie Optional
Silent Auction - Open Bar - Sit Down Dinner

RSVP by June 12, 2009

vswain@cff.org


Order Tickets Online

2009
Honorees ------ Committee


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Get Your Invitation to the 2009 Fort Lauderdale’s Finest Singles Gala

Every honoree will receive two complimentary invitations to the gala, one for yourself and a guest.

But this is a special occasion, one that only you can invite your family and friends to.

A table of ten is $1500 and individual gala tickets are $150. The night includes entrance to the exclusive silent auction and live entertainment, dinner, open bar and valet parking.

There will also be an after party that is sure to keep everyone going so the Hilton Fort Lauderdale Marina (former Fort Lauderdale Grande) is providing discounted room rates.

E-mail your invitation request list to Vicki today.

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Get Down and Derby - Today

Tarpon Bend 4:30 - 7:30pm

Do you think you got what it takes?
Step up to the betting window and put your money where your mouth is!
Make a bet on the winning horse and have a chance at all sorts of prizes.

Derby gents wear your best and ladies wear those derby hats.
Those who win, place, and show in our hat contest will find out the benefits of the winners circle.

We will also be auctioning autographed items from your MIAMI HEAT!
Sports memorabilia includes an autographed team poster and basketball signed by the entire 2008-2009 playoff roster, including Wade, Beasley, Chalmers, Haslem, and all of your favorite team players!

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Hosted by: Mandy Spangler, a 2009 CFF Fort Lauderdale's Finest Honoree.

MAX I'M... GOING TO HELP CFF HELP FIND A CURE.

Host: Laura Brill
Location: Samba Room "The Club"
RSVP: Today

Max who has Cystic Fibrosis is turning 5 in May and as an honoree I have committed myself to raise money for people like Max. I am suppose to raise $2,000 but my NEW goal is to raise $5,000 in honor of Max's 5th birthday. Come celebrate with us at Samba Room's "THE CLUB" , May 8th at 6:30. Thanks for all of my donors and sponsors.

Max's story: www.9542design.com/maxim2.html

Sponsors for silent auction gifts as of April 25:
Casbah Day Spa, Jet Runway Cafe, Man-Kind, Galuppi's, Bang Hair Stylists Matt Duncan and Leona Jarvis, Jackson's Bar & Grille, Palm-Aire Country Club, Wellness Achieved Studio and 918 Spa.

Can join us but would like to donate?
Please visit www.cff.org/LWC/LauraBrill


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Have Great Pics From Bryan's Bday Fundraiser? Send Them In.

Had a great time at Bryan's Bday Fundraising Event last night at the Briny Irish Pub!

Somehow everyone looked great, even if they were all suppose to be in their 80's.

That's why we need those great pics everyone was taking.

Send them in to bgold675@hotmail.com or vswain@cff.org


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Ready to Get "Down and Derby"?

Ladies...grab your hats...Fellas...hold on to your jockies...
It's time to get ready for the KENTUCKY DERBY!

On Saturday, May 2, 2009 from 4pm - 7pm, Mandy Spangler will be hosting a fundraiser for the Cystic Fibrosis Foundation (location to be determined). So get ready to join me in the winner's circle, as we sip mint julips and watch the fastest two minutes in sports! The betting tables will be open.

Save the Date...

Date: Saturday, May 2, 2009
Time: 4pm - 7pm

Get "Down and Derby" for the Kentucky Derby!

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Follow Fort Lauderdale's Finest Everywhere

Hello world, just wanted everyone to know that following
Fort Lauderdale's Finest is now even easier !

Follow us on Facebook and Twitter !

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Bryan Gold - Bday Fundraising Event

Host:Bryan Gold
Type:Party - Birthday Party
Network:Global
Start Time:Friday, April 17, 2009 at 9:00pm
End Time:Saturday, April 18, 2009 at 4:00am
Location:starting at briney pub, then to tarpon bend, then diceys, we may make a few stops in between though(everything within walking distance)
City/Town:
Fort Lauderdale, FL
Phone:
9544643459
Email:
bgold675@hotmail.com

View Facebook Event Page

Briny Irish Pub
www.brinyirishpub.com3440 E Atlantic BlvdPompano Beach, FL 33062(954) 942-3159Get directions4 reviews and more »

Attention: Calling on all senior citizens! Skip bingo night, turn up the volume on your hearing aids, and take 2 of every pill in your medicine cabinet. On Wednesday, April 15th I finally hit the big 80. I’ve lived a long and fruitful life and there is no better way to celebrate my way out by throwing a huge blowout theme party!!! I wouldn’t have it any other way.

The theme of the party is Bryan’s 80th B-day Bonanza. I am switching my 80th b-day with my 30th b-day so I have something to look forward to for the next 50 years. For anybody who makes it that long…you are cordially invited to my 30th b-day on April 18th, 2059. That year my birthday falls on a Tuesday. Don’t forget to mark it in your calendars.

Also, I was selected as one of “Fort Lauderdale’s Finest Singles” by the Cystic Fibrosis Foundation of South Florida. As an honoree, I have made a personal pledge to raise $2,000 for cystic fibrosis (CF) research. I saw this party as a great way to help me raise the money. This means alot to me so I am requiring that everyone at least bring $10 as a donation in order to attend this party. Thank you very much in advance.

Suggestions for Dress Code-this is Bryan Gold’s 30th Bday so I would appreciate if all of you dressed up. You will have more fun if you do. Men-Dress up like senior citizens. Funny pants up really high, Glasses, Grey Wigs, Walkers with tennis balls on the bottom, motorized wheelchairs (I’ll buy all the drinks of the person who comes in a motorized wheel chair), canes, suspenders, high socks, (guys this is fun because if you are dressed like old men you are allowed to grab women wherever you want and they can’t get mad at you)

Women- any of the chicks from the golden girls (Blanche Devereaux(the serious one), Rose Nylund(the old slutty one), Sophia Petrillo(Dorothy’s sicialian mother-she made a mean meatball), or Dorothy Zbornak(the dumb old lady)-yeah, I know their last names. I may have mixed them up but who cares.
Or Slutty nurses (caregivers)—I don’t need to tell you girls what to wear….You may also invite anyone else that I may have missed.

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2009 CFF Fort Lauderdale's Finest Singles Honorees

Meet the 2009 Honorees
Andrea Lourido
Ashley Bathgate
Brandon McCarraher
Brandon O'Malley
Brandyn Lorenz
Branstan Clarke
Britta Schlager
Bryan Gold
Camren Khoshnood
Carrie Allgaier
Cheryl McCann
Chris Hill
Christian Meighan
Christina Antimucci
Jean Nuamah
Jeremy Schwab
Jonathan Frank
Josh Leidolf
Kristin Govoni
Laura Brill
Lauren Arseneau
Mandy Spangler
Marisa DeMartino
May Mokdad
Meredith Clements
Michael McAllister
Natalie Echavarria
Romina Sifuentes
Russell Flowers
Ryan Shea
Scott Somers
Taryn Conner
Todd Weidert
Tracy Kirk
Vicky Frizone

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Learn More About The CFF Therapeutics Pipeline

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Fort Lauderdale's Finest Singles 2009 Pre-Event Cocktail Reception

April 2, 2009 7:00 pm ~ 9:00 pm
Pre-Event Cocktail Reception

The Pelican Bar and Grille Hyatt Regency Pier Sixty Six
2301 S.E. 17th Street Causeway, Ft. Lauderdale, FL
Please RSVP to Vicki Swain by March 26th
954.739.5006 vswain@cff.org


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CFF In The News

“Patient Power”
Forbes showcased the Foundation’s leadership and influence in driving drug development for a rare disease. The story highlighted the Foundation’s progress through the eyes of one CF patient, Emily Schaller. She said of the Foundation: “They’re the reason I’m alive.”
Forbes, September 15, 2008

“Breathing Easier”
A cover story in Chemical and Engineering News highlighted the Foundation’s drug development
efforts. The story notes that a stream of new drugs that treat the core defect in CF could reach patients in the next few years, thanks to the ambitious efforts of the Foundation.
C&EN, September 1, 2008

“PTC Therapeutics Announces $25 Million Award From CFFT for Development of PTC124”
PTC Therapeutics, Inc. and Cystic Fibrosis Foundation Therapeutics, Inc., the nonprofit affiliate
of the CF Foundation, announced the expansion of an existing collaboration to support the development of PTC124, a new investigational drug for the treatment of CF. PTC will receive up to $25 million from CFFT in support of clinical trials.
CTP Therapeutics, July 16, 2008

“Transave Announces Positive Phase II Results for Once daily ArikaceTM in the Treatment of CF Patients Who Have Pseudomonas Lung Infections”
Transave, Inc., announced positive Phase 2 results for its lead investigational drug, Arikace™.
The inhaled compound is being developed for the treatment of CF patients who have lung infections due to the bacterium Pseudomonas aeruginosa. Cystic Fibrosis Foundation Therapeutics, Inc., provided a $1.7 million award to support the development of Arikace.
Transave, June 13, 2008

“Inspire Announces Positive Results From Phase III Clinical Trial of Denufosol”
Inspire Pharmaceuticals, Inc., announced positive results from a Phase 3 clinical trial of denufosol, an inhaled therapy for the treatment of CF. Denufosol is designed to improve chloride
transport in the airways and enhance mucus hydration and clearance. The data from the trial is
particularly encouraging because it brings the CF community one step closer to a novel treatment that addresses the basic defect in CF.
Inspire, June 6, 2008

“Drug Makers Turning to Nonprofits for Cash”
The Boston Globe featured a story on the front-page of its business section about the Foundation’s efforts to develop effective therapies for CF. It mentioned the Foundation has awarded $300 million to biotech companies for this purpose, and announced an expanded $37.7 million collaboration with EPIX Pharmaceuticals.
The Boston Globe, April 7, 2008

“A Healthy Gamble for CF”
An article in BusinessWeek online showcased the Foundation’s unique business model and promising investments in biotech companies. The story highlighted the positive early results of an ongoing clinical trial of VX-770, an oral drug that targets the core defect in CF being developed by Vertex Pharmaceuticals.
BusinessWeek, April 3, 2008

“Vertex Reports Positive Results for Phase II Clinical Trial of VX-770”
Data from a Phase 2a clinical trial in CF patients who carry the G551D gene mutation showed that an oral dose of VX-770 for 14 days resulted in improved lung function, improved nasal potential difference measures, and sweat chloride levels. Vertex reported that, “while these are early data, it is unprecedented for an investigational oral compound for the treatment of CF
to have such a marked effect on multiple measures of CF disease activity.”
Forbes, March 27, 2008

“Landmark Clinical Trials Initiated for Drugs Designed to Repair Defective CF Protein”
In a major milestone for the Foundation, two drugs that target the core defect in CF have entered clinical trials. Vertex Pharmaceuticals, in collaboration with the Foundation, began a Phase 2 trial for VX-770 in late 2007, and in early 2008, began evaluating VX-809 in healthy volunteers. The two drugs were developed as a result of an historic collaboration, which harnesses high-throughput screening for drug discovery.
Vertex, January 2008

“Breath of Fresh Air for Cystic Fibrosis Drug Pipeline”
Pharmaceutical Approvals Monthly, a leading biotech publication, ran a story on the success of the Foundation’s drug discovery and development pipeline. The outlook for CF drug development is “a very different story than even five years ago,” said Robert J. Beall, Ph.D., president and CEO of the Foundation.
Pharm Approvals Monthly, December 2007

“Foundation Launches New Collaboration With AMRI”
CFFT, the nonprofit affiliate of the CF Foundation, announced a four-year research collaboration with AMRI, worth up to $23.7 million. The project aims to identify novel drugs that address the core CF defect.
AMRI, October 4, 2007

“Venture Philanthropy on the Rise”
An article in CenterWatch Monthly reported on the trend of venture philanthropy nationwide and identified the CF Foundation as the charitable organization spending the most on drug research and development. In fact, the Foundation will spend $48 million on drug research in 2007, three times more than any other disease foundation in the country.
CenterWatch, August 2007

“$22M to Help FoldRx Develop Drug for Cystic Fibrosis”
An article in The Boston Globe featured the CF Foundation’s new $22 million biotech collaboration with FoldRx Pharmaceuticals to discover and develop new compounds to treat the core defect in CF. In 2007 alone, the story said, the Foundation has earmarked $48 million for drug research with biotech companies as it seeks to stock its drug pipeline with promising treatments.
The Boston Globe, August 13, 2007

“Gilead Announces Expanded Access Program for Aztreonam Lysine for Inhalation for Patients With Cystic Fibrosis”
Gilead Sciences, Inc. announced the launch of an early access program Aug. 1, 2007 to provide its investigational therapy, aztreonam lysine for inhalation, to patients with cystic fibrosis and Pseudomonas aeruginosa infection who have limited treatment options and are at risk for disease progression.
Gilead, July 9, 2007

“A Different Sort of Venture”
The Foundation was prominently featured on National Public Radio’s Marketplace program. The
show, heard by 4.5 million listeners, credited the Foundation for bringing promising CF drugs to
market and helping people with CF live longer.
NPR, June 8, 2007

What Is Cystic Fibrosis?

Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that:

• clogs the lungs and leads to life-threatening lung infections; and
• obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.

In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond.

Symptoms of Cystic Fibrosis

People with CF can have a variety of symptoms, including:

• very salty-tasting skin;
• persistent coughing, at times with phlegm;
• frequent lung infections;
• wheezing or shortness of breath;
• poor growth/weight gain in spite of a good appetite; and
• frequent greasy, bulky stools or difficulty in bowel movements.

Statistics

• About 1,000 new cases of cystic fibrosis are diagnosed each year.
• More than 70 percent of patients are diagnosed by age two.
• More than 44 percent of the CF patient population is age 18 or older.
• Currently, the predicted median age of survival is 37 years, more than double what it was 25 years ago.

Testing for Cystic Fibrosis

Genetic Carrier Testing
More than 10 million Americans are symptomless carriers of the defective CF gene. Genetic carrier testing can help detect carriers, who could pass CF onto their children. To have cystic fibrosis, a child must inherit one copy of the defective CF gene from each parent. Each time two carriers of the CF gene have a child, the chances are:

• 25 percent the child will have CF;
• 50 percent the child will carry the CF gene but not have CF; and
• 25 percent the child will not carry the gene and not have CF.

Newborn Screening
Newborns screened for cystic fibrosis can benefit from early diagnosis and treatment, which can:
• Improve growth;
• Improve lung function;
• Reduce hospital stays; and
• Add years to life.

While newborn screening is not a definitive diagnostic test for cystic fibrosis, it may lead to tests that can rule out or confirm a CF diagnosis. The CF Foundation and the Centers for Disease Control and Prevention recommend screening for cystic fibrosis for all newborns.

Sweat Testing
If a person exhibits symptoms of CF, a doctor may order a sweat test. This simple, painless test is the best way to diagnose cystic fibrosis. It measures the concentration of salt in a person’s sweat, and a high salt level indicates CF. Sweat tests should be done at a CF Foundation-accredited care center where strict guidelines help ensure accurate results.

Treatments for Cystic Fibrosis

People living with cystic fibrosis must follow a regular treatment routine to stay healthy and maintain optimal lung function. Most often, treatment for CF begins with techniques to trigger strong coughs that help loosen and clear thick mucus from the airways. Nutrition and drug therapies are also important for children and adults with cystic fibrosis.

The Cystic Fibrosis Foundation

The mission of the Cystic Fibrosis Foundation, a nonprofit donor-supported organization, is to assure the development of the means to cure and control CF and to improve the quality of life for those with the disease.

Thanks to the dedication and financial backing of our supporters—patients, families and friends, medical professionals, researchers, volunteers, individual donors, corporations and staff—we are making a difference.